What’s Next?

February is Retintiis Pigmentosa Awareness Month.

Words are meaningful. They have an impact whether it is the intended one or not. Regarding my condition, I have been told the absolute worst case scenario— “it’s not a matter of if you go blind, but when.” I’ve heard an encouraging report— “I have clients in their 70s, 80s, and 90s who have this condition and aren’t blind, who have lived prettty good lives.” I s also heard the best outcome— “From the looks of things, this codntioj is about as bad as it’s going to get for you. You’re not going to go blind, and based off genetics, it won’t affect your children either.” I have taken all these things and prayed over them because they vary in degree of extremity and though doctors are more knowledgeable about this condition than I am, they cannot tell my future.

At the end of the day, I have to trust the word of God. I have to trust what I know He has said about Himself and who I am to Him. Trusting God can sometimes be an abstract concept; what does it practically look like to trust Him? For myself trusting God means doing what I can while I can. hav I have to be faithful over my responsibilities, I have to continue to live life, and pursue my purpose. Doing these things has not changed my circumstances, but it has given me the desire to do more with my life. Throughout Scrioture we encounter God and His plans for good for humanity and I trust that His goodness applies to me as well as those long ago. If the cross is true then it must be true for me too.

What’s next for me is to get a devotional I have been working on published. My desire is to have it published in the very near future on the YouVersion Bible app. It is complete, all I have to do is send it to get it published. I am also planning to write an autobiography chronicling my life with RP. I also plan to travel as much as I can. Most importantly, I am going to continue to live my life to the fullest. I believe this plane of conscious existence we have on Earth is meant to be experienced and enjoyed and it cannot be so if I am bitter and complacent about my situation. No, I do not want to live with this and I honestly wish so never even knew it existed. I want no parts of retinitis pigmentosa, but this condition will not outlive me. This condition does not limit me and it does not define who I am. It’s Gods word over my life that does. And the same is true for you. What’s next for you?

Until next time, continuentonstaynguides bybgrace,

Tra